About
About Us
A grassroots coalition standing with Kentuckians who rely on Home and Community-Based Services (HCBS).
Who we are
Save Medicaid Kentucky is a grassroots coalition of families, self-advocates, providers, caregivers, Direct Support Professionals (DSPs), and community supporters dedicated to protecting and strengthening Kentucky's Home and Community-Based Services (HCBS).
We stand with individuals with intellectual and developmental disabilities, physical disabilities, medically complex Kentuckians, older adults receiving waiver services, and the families and DSPs who make daily life possible. We believe every Kentuckian deserves the opportunity to live safely in their community with dignity, independence, and access to quality care.
Our mission
Protecting Kentucky's most vulnerable.Empowering families through advocacy.Strengthening home and community-based services together.
We advocate through education, civic engagement, collaboration, and informed public policy. Our work centers on building solutions with the Governor's Office, the Cabinet for Health and Family Services, the General Assembly, providers, advocacy organizations, and families—so Kentuckians can remain in their homes and communities with the care they need.
Who this coalition represents
Kentucky's 1915(c) waivers serve a broad community. Our coalition brings together:
- Individuals with intellectual and developmental disabilities
- Individuals with physical disabilities
- Medically complex individuals
- Older adults receiving waiver services
- Families and caregivers
- Direct Support Professionals (DSPs) and providers
- Self-advocates and community supporters
What we do
We share Kentuckians' stories, connect neighbors to action, host events such as the KY Disability Waiver Town Hall & Rally, and help people contact their elected leaders. Explore why HCBS matters or read voices from across the state on our stories page. This website is our digital home; it is not medical, legal, or benefits advice.
Participating organizations
Save Medicaid Kentucky is built by families, advocates, DSPs, and partner organizations across the Commonwealth. More partners will be added as this coalition grows.
NCSA Kentucky
The Kentucky chapter of the National Council on Severe Autism. NCSA Kentucky supports individuals with severe autism, IDD, and complex support needs, and advocates alongside families across the Commonwealth to protect HCBS waiver services. Starr Garcia serves as Kentucky State Chair.
Learn more →
ImpactLex
A Lexington-based provider of community living supports, personal care, person-centered coaching, and other HCBS waiver services. ImpactLex stands with Kentucky families, DSPs, and self-advocates working to protect and strengthen home and community-based services.
Learn more →